CF Family Education Day

Welcome
Michael Powers, M.D. & Approved Modulators Kelvin MacDonald, M.D., RRT & Corinne Muirhead, PharmD
Review of CFLN
Michael Powers, M.D.PFEC Why Your Voice Is Important, Video Premier Ben McCullar, RN • Brianne Mendoza, Parent Partner Late Clinics: Working to Improve Your Experience Ben McCullar, RN PVP/Story tellingEmily Somervell, LCSW Food Insecurity Emily Somervell, LCSW • Patricia Rose RD, CSP, LD
CF 104
Michael Powers, M.D.
Breakout Session 1
Kim Keeling, RT – Respiratory Therapy Education for Young Children c
Breakout Session 2
Kim Keeling, RT – Respiratory Therapy Education for Teens
Mental Health Screening/Center Data
Alexandra Tharp, MSW, CSWA • Michael Powers, M.D.
Research Updates and “A Day in the Life” of a Research Participant
Brendan Klein, MPH, CCRP • Special Guests: Brandy and Jason Hussa
Next Gen Modulators/Next Ten Years
Michael Powers, M.D.

Cystic Fibrosis Learning Network - Michael Powers, M.D., Lindsay Deveaux
Partnerships for Sustaining Daily Care - Cindy George, M.S.N., F.N.P. and Katherine Raymond, M.S.W.
Equipment Cleaning/PEP - Kim Keeling. R.R.T.
CF Cultures: Simplified! - Kelvin MacDonald, M.D.
Research Pipeline/OHSU Research/Clinical Trial Finder - Michael Powers, M.D., Brendan Klein, M.P.H., C.C.R.P.
CF 103 - Michael Powers, M.D., Megan Johnson, R.D., CF Team
Cystic Fibrosis Center Data - Michael Powers, M.D.

Greeting - Michael Powers, M.D.
CFTR Mutations and Their Treatment Implications - Kelvin MacDonald, M.D.
Research Coordinators – Kim Simmons & Patient Experience
CF 102 – Michael Powers, M.D. and all attendees
CF-GI Topic - Amy Garcia, M.D.
Breakout Session 01 The Fighting Power of Food - Patricia Rose R.D., C.S.P., L.D.
Breakout Session 02 What Do Your Culture Results mean? – Alexandra Cornell, M.D.
Mental Health Guidelines - Emily Somervell, L.C.S.W.
CF Center Data & Center Highlights – Michael Powers, M.D.

Presentations